Tuesday, March 29, 2011

Weeks 7 & 8

This helmet is sooooo much better than the last one.  I really need to focus on how happy I am that we have a helmet that fits for the last half of her treatment and not dwell on the fact I'm so irritated we wasted the first half on a bad fit.  There has been tremendous improvement in just the 2 weeks that she has had it.  Well, in my opinion.  She still has a ways to go, don't get me wrong, but she is really rounding out.  It's funny because we were so worried about the plagiocephaly that we never really noticed she had brachycephaly too!  Now that her "flat spot" is getting better we are seeing it more.  Oh well.  I am so ready for this to be over.  I read all the message boards and everyone is so upbeat and their children adjusted so well to the band.  Poor Quinn hates it.  It very well could have been because the helmet fit so poorly in the beginning, but she is not loving it like everyone else describes.  We are in the process now that her helmet stays on of moving her back in her own bed.  Eeh gads is that tough.  Little munchkin is so used to waking up with Mama right there that when she wakes up now she's in a full sweat terror!  She got up every hour two nights ago.  Thank goodness Daddy was there to take some of the wakings.  She's been asleep for an hour now.  Let's hope she has a good night!

Here's a photo we snapped tonight of her head progress.  Better right?  Have a good week!

Thursday, March 17, 2011

Week 6

I cannot believe we are technically halfway through this nightmare!  Six weeks really has flown by.  I do see that her head has improved a lot, so hopefully this will all be worth it in the end.  We got our new helmet yesterday and so far so good.  There are some minor tweeks that still need to be done, but I can finally see my baby's eyes and it seems to be staying on better this time.  Her second casting was a breeze and she was a trooper.  She even busted out some dance moves during the process (thanks again to Daddy for the musical and dance entertainment!).  The orthotist tried to convince us to be done with the helmet saying if it were his kid he'd leave today.  I'm 99% sure he just wants to be done with us, I can't imagine we're his favorite clients.  Seriously though, her head looks better but she's still pretty flat.  89% cephalic index is nowhere near "normal" and if she's going to look back at pictures and see herself in a helmet, she better be able to look in the mirror and see a perfectly round melon. Here's looking forward to an easier last 6 weeks!

Really guys, this again?

Daddy the Duck
 In other news, my little bumblebee turned 7 months old today!  Where is the time going?  I just want her to stop growing for a year.  Then, other times I can't wait for her to grow up.  So is the life of a mother I guess.

7 Months Old
 All for now.  No pictures of the new helmy yet but will post soon!

Tuesday, March 8, 2011

Week 4 & 5

We're getting a new helmet!  Finally.  Our orthotist came to terms with the fact there is no fixing this original helmet and we are going to get casted again (poor Quinn) tomorrow.  Here's hoping this one fits nicely.  Sheesh, she'll have been in this poorly fitting one for half the entire time!  What a stinkin' waste.  ALTHOUGH...we had our follow up appointment with the neurosurgeon last week and he saw nice improvement.  Her cephalic index went from 94% to 90% in the four weeks she was wearing it.  So I guess it's not all that bad.  I think the visit is what prompted the decision for a new helmet.  The orthotist was at the follow up appointment and the neuro guy basically bashed the helmet fit. 

I wanted to share a couple pics of the decorated band before it hit helmet graveyard.  I think it turned out so cute.  We're debating whether or not we'll decorate this new one.



In other news, our little birdie has taken to dancing.  She dances to any beat she can find.  It's so cute!  Today she was dancing to firetruck sirens.  Love her.